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(2) Sat 1 May 93 1:18p
By: Earl Appleby
To: All
Re: Signs of Dependency
ABLEnews to Use
Ten Signs of Chemical Dependency
1) Frequently cancels plans or just fails to show up.
2) Sometimes calls to chat but later can't remember the
conversation.
3) Socializes with people who drink heavily or use drugs and
only goes to parties where alcohol and/or drugs may be
available.
4) Makes a big deal about not drinking periodically, such as
during Lent or pregnancy.
5) Has trouble managing money, borrows cash or runs up credit-
card charges.
6) Keeps prescription pills handy and offers them freely to
friends.
7) Misses work a lot or has a difficult time on the job.
8) Has physical symptoms, such as hyperactivity, quick weight
loss or gain, bloated or flushed appearance, failure to make
normal eye contact.
9) Faces problems at home or complains about friends,
colleagues, or relatives, even cutting some of them out of
his or her life.
10) Has a personality change or acts contrary to previously
espoused values.
With a tip of our ABLEnews hat to the Hazeldon Foundation.
...For further information, contact CURE, 812 Stephen Street,
Berkeley Springs, West Virginia 25411 (304-258-LIFE/258-5433).
* Origin: ABLEnews...you can use. (1:262/4)
(25) Tue 4 May 93 9:19p
By: Karen Storek Lange
To: All
Re: New Parents Network
With this message, New Parents Network formally joins this echo.
Thanks for letting us be a part of your efforts. NPN is a non-profit
organization that has set up a national databank designed to link and fully
describe all agencies that serve the needs of parents and children.
Our gathered files are disseminated through our BBS network and through our
software (for hospitals, libraries, Universities, etc.). We have hundreds of
files describing product recalls, immunization schedules, poison control,
support groups for parents and organizations that help parents of children with
disabilities. The information is categorized by topic and location.
All social services, support groups and government agencies that assist parents
and children are invited to be listed and fully described on our databank
(NPNet) free of charge.
Thanks!
Karen Storek Lange
Executive Director
* Origin: New Parents Network Nat'l BBS (602) 326-9345 Tuc, AZ (1:300/31)
(37) Fri 7 May 93 6:11p
By: Earl Appleby
To: All
Re: Can Al-Anon Help?
St: Local
ABLEnews to Use
Can Al-Anon Help?
Al-Anon and Alateen helps relatives and friends of alcoholics.
Here are twenty questions to help you decide if you could use
their help:
1) Do you worry about how much someone else drinks?
2) Do you have money problems because of someone else's drinking?
3) Do you tell lies to cover up for someone else's drinking?
4) Do you feel that if the drinker loved you, he or she would
stop drinking to please you?
5) Do you tell yourself the drinker's behavior is caused by his
or her companions?
6) Are routines frequently upset or meals delayed because of the
drinker?
7) Do you make threats such as, "If you don't stop drinking, I'll
leave you"?
8) When you kiss the drinker hello, do you secretly try to smell
his or her breath for traces of alcohol?
9) Are you afraid to upset the drinker for fear it will set off a
drinking bout?
10) Have you been hurt or embarrassed by the drinker's behavior?
11) Does it seem as if every holiday is spoiled because of
someone's drinking?
12) Have you considered calling the police for help when someone
close to you becomes abusive after drinking?
13) Do you find yourself searching for hidden alcohol?
14) Do you continue to ride in a car with a driver who has been
drinking, even though you know it is dangerous?
15) Have you refused social invitations because you fear the
drinker might embarrass you?
16) Do you sometimes feel like a failure when you think of the
lengths to which you have gone to control the drinker?
17) Do you think that if the drinker stopped drinking, your other
problems would be solved?
18) Do you ever threaten to hurt yourself to scare the drinker?
19) Do you feel angry, confused, and depressed most of the time?
20) Do you feel there is no one who understands your problems?
According to Al-Anon, if you answered "yes" to three or more of the
preceding questions, they may be able to help. For further information,
contact Al-Anon (or Alateen) at their number in your local phone directory
or write:
Al-Anon Family Group Headquarters, Inc.
PO Box 862, Midtown Station
New York, NY 10018-0862
1-800-356-9996
* Origin: ABLEnews...you can use. (1:262/4)
(69) Wed 12 May 93 6:41a
By: David Andrews
To: All
Re: Interesting Conversations
* Original Area: BLINDTLK
* Original To : All (1:261/1125)
For those of you who have access to CompuServe, there are some
interesting conversations going on in the Disabilities Forum, Section
5, (go disfor.) A fairly high-level representative of Microsoft is
checking in and conversing with us. He is in charge of their recently
created accessibility unit and his name is Gregory C. Lowney. He was
previously in charge of Windows 3.1 development, so has some knowledge
and clout. While they are far from perfect, they are at least trying.
Also on the Graphical User Interface scene, there is an IBM programmer
who is intimately involved with IBM Screen Reader/2 for OS/2. He
gives us some interesting insights. Finally, Jim Fruchterman,
President of Arkenstone, checks in as well as an engineer for Kurzweil
Computer Products. He has written much of the Reading Advant5age
software. This makes for some interesting interchanges.
See you on-line.
David Andrews
* Origin: NFB NET Baltimore, MD (410) 752-5011 (1:261/1125)
(70) Wed 12 May 93 3:22a
By: Arlette Lefebvre
To: All
Re: We're all special
WE'RE ALL SPECIAL:
Self-Esteem Activity Package For Parents
and Their Children
I'm always AMAZED to find out the number of great resources being published
right here in Southern Ontario, which I knew NOTHING ABOUT!!!
In this particular case, its even a Canadian Mental Heath Association
publication...(!!!), and, if it hadn't been for a wonderful mom I just met this
morning who brought it in...I might have waited ANOTHER 20 years to hear about
it!
Basically, the goal is to increase parents awareness of their personal self-
esteem and of the role they play in building their child's self-esteem. The
Parents' Guidebook includes :
* a self-esteem evaluation for adults
* how to increase your own self-esteem
* building your childs self-esteem
* a self-evaluation for children
* a list of further resources for building parent's and children's self-
esteem..and more!
The Activity Package (broken down by age category, from 4 to 18) consists of 42
lessons and exercises for one or more children, as well as family activities to
help kids learn to
*IDENTIFY and EXPRESS, in healthy ways, feelings of: anger, anxiety,
depression, fear, loneliness and love,
*as well as how feelings affect our bodies,
*how to build and maintain self-respect,
*how to recognize and change the things we do not like about ourselves,
*how to become familar with stress and the role it plays in our lives,
*how to distinguish between being alone and being loney,
*how to accept drifferences in ourselves and others,
*how to make friends and nurture friendships.
Frankly, it looks like a real BARGOON for just $15.00, for teachers as well as
social workers, rec therapists, parents, and even shrinks!
FOR MORE INFORMATION, CONTACT:
The Canadian Mental Health Association,
Durham Branch,
111 Simcoe Street North,
Oshawa, Ontario L1G 4S4
Telephone: (416) 436-8760
Fax: (416) 436-1569.
Au revoir, I hope...?
Arlette.
* ADAnet: Ability OnLine - Toronto Canada - 416/650-5411
(78) Thu 13 May 93 3:21a
By: Arlette Lefebvre
To: All
Re: Disabled mothers
I WANT TO BE A MOTHER, I HAVE A DISABILITY:
WHAT ARE MY CHOICES....?
DAWN Ontario Brochure, 1993.
CHOICES: WHAT THIS BROCHURE IS ALL ABOUT
If you have a disability, usually you can have a baby with little risk to you
or th child. You may face extra challenges to a successful pregnancy and
childbirth, depending on your disability. But you DO have the right to decide
for yourself.
DisAbled Women's Network (DAWN) supports your choice to have children .
Here are some of the resources listed in this brochure:
CHILBEARING AND PARENTING PROGRAM FOR WOMEN WITH DISABILITIES/CHRONIC ILLNESS:
For a guide to aids and adaptations, contact: Elaine Carty, School of Nursing,
University of British Columbia, 206-2211 Westbrooke Mall, Vancouver, B.C. V6T
2B5
DAWN ONTARIO
4 Warner Avenue
Toronto, Ontario M4A 1Z#
MOTHER-TO-BE: A GUIDE TO PREGNACY AND BIRTH FOR WOMEN WITH DISABILITIES By Judy
Rogers and Molleeen Matsumura New York, Demos Publications,1991 156 Fifth
Avenue, New York, N.Y. 10010
PARENTING: AN ACCENT GUIDE
TIPS FROM PARENTS (who happen to have a disability) ON RAISING CHILDREN Accent
Special Publications Cheever Publishing Inc, P.O., BOX 700 Bloomington, IL
61702
THE BABY CHALLENGE: A HANDBOOK ON PREGNANCY FOR WOMEN WITH A PHYSICAL
DISABILITY
By Mukti Jain Campion
New York: Tavistock/Routledge 1990
(helpful information on how specific disabilities relate to pregnancy)
THROUGH THE LOOKING GLASS
(newsletter for disabled parents)
801 Peralta Avenue
Berkeley, California 94707.
......AND.........
If you have concerns about drugs that you take for your disability, call the
service Mother Risk, at (416) 813-6780.
Arlette
* ADAnet: Ability OnLine - Toronto Canada - 416/650-5411
(89) Sun 16 May 93 3:20a
By: Arlette Lefebvre
To: All
Re: Managing incontinence
St:
STAYING DRY:
THE SIMON FOUNDATION OF CANADA
People with incontinence and their caring friends and family mebers no longer
need to struggle in silence: the Simon Foundation of Canada now publishes a
very informative newsletter, called "THE INFORMER", which explains things like
the difference between urge and stress incontinence, reviews useful products
and books, and facilitates networking through penpals.
Their 7th edition, which I have in front of me now, focuses on urge
incontinence in particular. Two books and a self-help manual are mentioned
which I will NOT order, but some of you might be interested in:
STAYING DRY, by Burgio, Pearce and Lucco, 1989, is recommended as an
excellent review of behavioral approaches to gaining bladder control
It will cost you $12.95 (U.S.) plus shipping and handling. Call
1-800-537-5487 for more information or to receive a copy.
MANAGING INCONTINENCE- A GUIDE TO LIVING WITH LOSS OF BLADDER CONTROL,
edited by Cheryle gartley, Founder of the Simon Foundation, is a book
of hope and counsel for those with urinary incontinence and their
families. It offers ways for incontinent people to live normal,
active, happy lives once again. For a copy, send a cheque for $16.00
payable to the Simon Foundation of Canada, PO Box 264, Station E,
Toronto, ON M6H 4E2.
I CAN MANAGE ($14.95) and copies of KEGEL EXERCISES and bladder training
instructions are also available through the Simon Foundation.
The TORONTO address for the Simon Foundation of Canada is:
Station E, post Office Box 264
Toronto, Ontario M6H 4E2.
PS: To become a ful member of the Simon Foundation and receive this newsletter
will cost you $15.00 a year.
Au revoir, I hope...?
Arlette.
* ADAnet: Ability OnLine - Toronto Canada - 416/650-5411
(101) Sat 22 May 93 9:46p
By: Earl Appleby
To: David Venable
Re: Epidural Pumps
David,
Please pardon the delay in getting this information back to you but the
following messages were received as a result of my cross-posting your earlier
message regarding your wife's interest in epidural pumps on other conferences.
Date: 04-18─93 (07:47)
To: EARL APPLEBY
From: STEW BOWDEN
Subj: RE: EPIDURAL PUMPS
Conf: ABLED (16)
Hi Earl: I'll try and explain an epidural pump. First, a catheter is placed in
the epidural section of the spine. To this is connected a pump with doses of
medication. There are computerized doses figured by the medical staff which are
automatically injected into your system. However, if you feel the amount is
inadequate to reduce your pain, you can puch a button a demand more. The
computer is fixed so you cannot overdose, and it is battery powered. I think
the battery lasts for about five years, but not sure. Also, am not sure how
often you must go in to have the medication in the pump replenished. Hope this
helps. Stew
* Originally posted on: Virginia Data Exchange (804)877-3539 (1:271/270)
Date: 04-30─93 (16:06)
To: EARL APPLEBY
From: ERIC SMITH
Subj: RE: EPIDURAL PUMPS
Conf: ABLED (16)
-=> Quoting Earl Appleby to All <=-
EA> To: All
EA> Re: epidural pumps
EA> Does anyone have any info on the use of IMPLANTED epidural pumps for
EA> chronic back pain, in the U.S.?
I'm not sure if this is what you mean, but there is a spinal column
stimulator which is implantable. You might write to Dr.
Michael Stanton-Hicks, Pain Program, Cleveland Clinic,
Cleveland. Sorry no better address. Also there doing the
implants is Dr. Samuel Haussenbusch.
Finally, here are some abstracts of articles regarding epidural pumps which you
may wish to share with your wife's physician:
Author: Dubois, M.Y.
Title: New Techniques In Postoperative Analgesia
Source: Postgraduate Medicine, November 1, 1991;90(6): 143-46,149-50
Abstract: Several new techniques are improving postoperative pain relief.
One is self-administered analgesia, which is effective and safe,
and often requires less medication than with traditional
intramuscular injections. In one technique, patients receive a
loading dose of an analgesic (usually morphine sulfate,
meperidine, or fentanyl) immediately after surgery, and then they
can give themselves additional amounts of the drug by pushing a
button on the infusion pump.
Several safeguards prevent overdosage. Patients readily accept
this procedure, since they do not have to rely on others for pain
relief, and the relief is faster than with more traditional
methods. However, some caution is required, since oversedation,
respiratory depression, and inadequate analgesia can occur.
Peripheral nerve blocks are being used more widely to provide
excellent postoperative analgesia after major reconstruction of
the extremities, and without the sedation of systemic narcotic
agents. Continuous epidural (spinal) analgesia is rapidly
becoming a primary method of postoperative pain management,
especially for abdominal, urologic, orthopedic, thoracic, and
vascular surgical procedures. However, risks and side-effects do
exist for epidural analgesia, and its use should be reserved for
patients in whom simpler methods cannot provide adequate analgesia.
These benefits ar not limited to adults; several of these newer
methods of postoperative analgesia, including patient-controlled
ones, have been used successfully in children.
Author: Findlay, S
Title: Taking Control of Your Pain
Source: U.S. News & World Report, June 15, 1992; 112(23): 67-68
Abstract: Approximately half of all hospital patients are given inadequate
or poorly-timed doses of painkillers according to a recent
government estimate. Recent research shows that pain can delay a
patient's recovery. Pain suppresses the immune system and causes
the release of hormones that raise blood pressure and metabolic
rate. Water retention is increased as well as blood's tendency
to clot. Pain can also cause depression, anxiety, and anger, and
inhibit a person's desire to eat. The delayed recovery that
results can add extra days to a patient's stay in the hospital.
People in pain breathe more shallowly and coughing is suppressed.
This increases the risk of pneumonia which can be lifethreatening
to frail, elderly people. An expert panel convened by the
government's Agency for Health Care Policy and Research, has
issued a set of guidelines for pain treatment. The panel
concluded that the "as-needed" approach generally used by doctors
allows the painkiller to wear off. Better pain control results
when doses of strong opioid drugs like morphine are given
frequently to maintain a steady blood level of painkiller.
Although these drugs are addictive, only about 1 in 3,000 patents
is at risk of becoming addicted. The panel also noted that a dose
of painkiller before a major operation can reduce postoperative
pain. Another treatment option for pain control is an epidural.
Before surgery, a catheter is placed into the canal surrounding
the spinal cord which delivers drugs thatblock pain impulss.
Experts now suggst that epidurals be used for major chest, hear,
abdominal, urologic or limb surgery. One of the newest pain
control techiques i spatient-controlled analgea (PCA). With the
hlpof an intravenous line attached to a pump, the patient can
push a button that releases painkiller directly into the blood
stream. Patients feel more in control and less anxious, and the
painkiller takes effect faster than with pill or injections.
About one third of the hospitals in the U.S. offer PCA. Other
techniques such as biofeedback, deep breathing, relaxation
exercises, and electrical nerve stimulation can also help with
pain control. These methods can help minimize the need for drugs
and can be used in conjunction wth drug therapy.
David,
I hope your wife is getting the help she needs. Please let me know if I may be
of any further assistance.
With best wishes for you both,
Earl
* Origin: You've got a friend on ABLEnews. (1:262/4)
(115) Mon 24 May 93 3:37a
By: Arlette Lefebvre
To: All
Re: Hepatitis b
WHAT IS HEPATITIS B....?
Pamphlet prepared by the Canadian Liver Foundation, May 1993.
In large centers like Montreal, Toronto and Vancouver, about one in 200 people
is a Hepatitis B carrier.
WHAT IS HEPATITIS B?
It is an inflammation of the liver caused by the hepatitis B virus. Most people
who become infected never feel sick and recover completely.Others get a flu-
like illness, and their skin and eyes may turn yellow ("jaundice"). A few
develop severe acute hepatitis which may be fatal. About 10% develop a chronic
infection which can lead to cirrhosis and liver cancer.
WHAT IS A HEPATITIS B CARRIER?
A Hepatitis B carrier is a person chronically infected with the virus.Such
individuals have not developed immunity as a result of infection. Hepatitis B
carriers may have smal amounts of the hepatitis B virus in their blood and
body fluids for the rest of their lives. most carriers appear healthy and
symptom-free, but some will develop chronic hepatitis, cirrhosis or cancer
years after being infected.
HOW IS THE HEPATITIS B VIRUS SPREAD ?
A person who has acute hepatitis B or who is a chronic carrier can pass on the
infection through sexual contact or contamination through bood and other body
fluids. Among the persons who are most likely to be infected are:
* babies of mothers who are hepatitis B carriers * household mmebers of
carriers * sexual partners of carriers * health care workers who look after
carriers and * drug users who share needles
Hepatitis B is NOT spread by water or food, or by casual contact, such as
occurs at most schools or workplaces.
ARE THERE WAYS OF PREVENTING HEPATITIS B ?
Yes! Hepatits B can be prevented by the folowing measures:
* avoidance of exposure to the virus
* administration of Hepatitis B immune globulin to people who have had recent
contact (seven days or less) with infected body fluids * active immunization
with a hepatitis B vaccine. Three injections of this very safe vaccine can
provide protection againts hepatitis B in almost everyone.
Unfortunately, none of these measures are effective in people who have already
been infected with hepatitis B.
HOW DO I FIND OUT IF I AM A CARRIER?
A simple blood test will determine whether you are a carrier.
WHO SHOULD HAVE THIS TEST ?
* All immigrants from high risk areas of the world and their families (Africa,
Sout-East Asia and the Mediterranean countries). * users of IV street drugs *
male homosexuals * men or women who indulge in promiscuous sexual practices *
health care workers * staff of institutions for the mentally handicapped *
firefighters, police officers, mortuary attendants or daycare workers.
FOR MORE INFORMATION, CONTACT:
The Canadian Liver Foundation,
1320 Yonge Street, suite 301,
Toronto, Ontario M4T 1X2
Tel.: (416) 964-1953
Toll-free: 1-800-563-5483.
Au revoir, I hope...?
Arlette.
* ADAnet: Ability OnLine - Toronto Canada - 416/650-5411
(122) Mon 24 May 93 10:22p
By: Mark Young
To: All
Hello there Earl et al., As you requested, this is a note to let all
know that as of May 24, 1993, the SOCIAL WORKER BBS (FidoNet
1:139/960) carries the ABLENews echo, among other consumer and
professionally-oriented human service, mental health, and
environmental echoes.
Mark Young, MSSW, ACSW
(Home of the THERAPIST echo)
* Origin: Have you hugged your SOCIAL WORKER today? (906)774-8555 (1:139/960)
(123) Sat 22 May 93 2:39p
By: Julie Sullivan
To: All
Re: ALBINISM
People with albinism (albinos) fail to produce usual amounts of pigment in the
back of the eye, reslting in poor vision (many legally blind) and dislike of
bright light. Most affected people also fail to make pigment in the hair,
which is very fair, and the skin, which burns in response to sun exposure.
THE ALBINISM FELLOWSHIP AND SUPPORT GROUP INC. (Australia) is an organisation
run for and by persons affected by albinism. Established in April, 1986, it
offers support and information for people with albinism as well as their
families, friends and professional advisors. Information available includes -
Educational facilities for the vision impaired, advice on skin care and
protection from the sun, advice on the range of visual aids.
There are similar groups operating in United States of America (NOAH, National
Organisation for Albinism and Hypopigmentation), Scotland (Albino Support
Group), Canada (NOAH), Tanzania, and South Africa. Other countries are being
encouraged to form support groups so information can be shared.
NOAH held its bi-annual National and first International Conference for
Albinsim last year in Chicago. During this conference the problems in Africa
were highlighted, as well as other areas in the world where support for people
with albinism is very much needed. In Tanzania there are about 170,000 black
Africans with albinsim, many dying by the age of 30 years due to melanoma.
THE ALBINISM WORLD ALLIANCE was formed during this international conference on
albinsim, to help address the problems of albinism not only in Africa, but
world w The Albinism World Alliance incorporates other groups from United
States of America, Canada, South Africa, Tanzania and United Kingdom. The
objectives of this international organisation is to maintain a network of
albinsim support groups, share information about albinism, promote awareness of
albinism internationally and to promote develoment of albinism support groups
throughout the world.
We would be keen to hear from anyone with an interest on albinism who may have
information to share, or who may be looking for information.
# Origin: Common Ground Tel +61-8-223-2131 (94:8660/3)
(138) Thu 27 May 93 3:34a
By: Arlette Lefebvre
To: All
Re: Disability networking
A DISABILITY NETWORKING TOOL:
The Hesperian Foundation is now announcing the revised and updated third
edition of a listing of over 3000 organizations and individuals worldwide that
work with people with disabilities in developing countries. This resource
includes both groups and disability workers based in developing countries and
those from developed countries that are addressing the needs of persons with
disabilities living in countries with less resources.
It is available on IBM 360K or 720 floppy disks on the following database
formats: PARADOX, Q & A, Dbase(2,3 or 4),DIF-Files, ASCII Fixed Field, and
ASCII Delimited. the cost of the listing is $15.00 in book or on computer disk
form. For BOTH the book and the disc, send $25.00 to:
The Hesperian Foundation
c/o Robert Rosenfeld
P.O. BOX 1692
Palo Alto, CA 94302.
Arlette
* ADAnet: Ability OnLine - Toronto Canada - 416/650-5411
(144) Mon 31 May 93 12:50p
By: Earl Appleby
To: All
Re: Doctors with Disabilities
ABLEnews Resource
Doctors with Disabilities
The American Medical News suggests these sources of career assistance
for physicians with disabilities:
American Medical Association
Physicians Career Resource
515 North State Street
Chicago, IL 60610
1-800-955-3565
Center for Professional Well-Being
Colony West Professional Park
21 West Colony Place, Suite 150
Durham, NC 27705
(919) 489-9167
The American College of Physician Executives
4890 West Kennedy Boulevard, Suite 200
Tampa, FL 33609-2575
1-800-562-8088
The American Society for Handicapped Physicians
105 Morris Drive
Bastrop, LA 71220
Wil Lambert, Sr., Director
(318) 281-4436 (please call evenings)
The Center for Physician Development
One Brookline Place, Suite 426
Brookline, MA 02146
(617) 735-2999
Suggested readings:
"Leaving the Bedside: The Search for a Non-Clinical Career"
1-800-621-8335 (order number: OP392092)
"Preparing a Professional Curriculum Vitae"
1-800-955-3565 (free oc charge)
...For further information, contact CURE, 812 Stephen Street, Berkeley
Springs, West Virginia 25411 (304-258-LIFE/258-5433).
* Origin: ABLEnews...your resourceful friend. (1:262/4)